skip to Main Content

Register to Become a Member Today

Forums Forums The Monthly Clubs May May 2018

Viewing 20 posts - 1 through 20 (of 57 total)
  • Author
    Posts
  • #318942

    Jenlea
    Participant

    Hi all I’m new here! I’ve just got my date for may and I’m anxious and excited can anyone tell me honestly what I will be like after it pain wise and mentally wise I’m 31 was sterilised 10 years ago I have endo so I’m having a total abdominal hysterectomy im scared but also excited to be out of constant pain. I’m also worried about looking after my children one has autism so if anyone has been in the same boat any advice would be hugely welcome luckily I have a massively supportive partner! Thanks in advance for any advice and the advice I’ve already read you lady’s are brilliant!!

    #318952

    juleskirk50
    Moderator

    Hello jenlea and welcome,

    You should pop over to the previous months and chat with some of the ladies there who are already recovering and will be able to reassure you that it’s really not as bad as we all think it is – some of us have a rocky recovery and some go smoothly but we all get there ! Xx

    I have just posted a recovery guide over in the April forum which you should have a look at as this will give you some idea of what you can and can’t do during the first few weeks after your surgery.

    If you let us know the date I will start a list.

    You are the only lady on our May list just now I am sure others will be along soon xx

    Take care xx

    #319208

    Jenlea
    Participant

    Hi juleskirk, thankyou for that my date is the 3rd of may I will have a look at the other groups thankyou xx

    #321457

    juleskirk50
    Moderator

    Jenlea – 3rd May

    You are the only May lady for now but I am sure others will be along to join you soon xx

    #324234

    Nervousnow
    Participant

    Hi @jenlea
    I’m just popping over here to May to see if I can offer any help or advice.. I just had my full hysterectomy with removal of cervix (keeper ovaries) by an abdominal incision on 11 April. I was extremely nervous before to the point of panic attacks etc and nearly backing out of the operation. Well, I’m glad I didn’t! It’s been 12 days for me now and I can honestly say that it hasn’t been too bad. The first 2 days WERE painful, I won’t lie, but with pain meds & good nursing & advice, I got through that ok only for everything to get better quite fast from day 3. I was in hospital for 5 days and that really suited me- I had no desire to be home sooner despite family life at home! I think if you take your time and do things in your own way you’ll be fine. I have (lazy) teens at home, one doing GCSEs and one just wanting to party all the time 😩 and they haven’t been a help but I’m leaving them to it. With a supportive OH you will be fine!
    The wind pain hurts & feels strange (you may know that from previous op..?) and I’m still drinking gallons of peppermint tea for it! You will get tired quite quickly so rest as much as you can but I’ve been sticking meals in microwave since day 2 at home (7 days post op) and also going up/down stairs and so far I’m ok!
    Do pop over to the April page & chat with everyone there- they are a great bunch of ladies and the advice is brilliant.. I couldn’t have got through it without this site actually- it’s been a huge support and who better to take advice from than people who have gone through it before. The waiting is the worst thing, it really is.
    good luck with it all- you will be fine! X

    #324273

    Katie 72
    Participant

    Hi there,

    posting for first time to add my name to May’s list, due surgery on 1st. Originally supposed to be April, but cancelled so been a bit of a wait and worrying in the meantime. FYI, any ladies reading this who can’t log on, it’s taken about 2 weeks to sort my log in: a very nice lady called Linda has been emailing me to help so would suggest emailing via the info@hysterectomy route, following the information link above if you’re having issues.

    Katie

    #324316

    juleskirk50
    Moderator

    Hello ladies and welcome Katie,

    Not too long for you ladies now – I hope you’ve been following the previous months ladies to get some idea of what to expect – if you have any questions just ask them and someone will have the answer xx 🙂

    Katie72 – 1st May
    Jenlea – 3rd May
    Sj38 – 6th May

    #324319

    Sj38
    Participant

    Hi,

    I’m having my LVAH ON 6/3 I only found out last week so it all feels a bit like a whirlwind yet I’ve waited nearly 20 weeks for a date. I’ve had really bad painful periods for 16 years plus and it was only last year I was sent for a scan and they found Adenomyosis. It was a relief to finally know there was actually something wrong and there was a reason I was in so much pain. Me and my surgeon opted for LVAH as my children are grown up now and I don’t want no more. Sounds silly but i worry so much more about recovery than the actual surgery. I also worry I will get there for my op and they will cancel.

    Good luck to all you May ladies.

    Sarah x

    #324322

    Jenlea
    Participant

    Hi all nice to see some more lady’s in may! I have my op on Thursday and I’m so nervous more so because I e had a week from hell my cousin killed himself last week my daughter dropped her brand new phone in the sea and had other things go wrong so I’m now thinking is my op gunna go wrong my heads a mess I’ve thought about cancelling and rebooking but I’ve waited since August last year and I’m sick of being in pain but I’m also worried because 7 days after my op is my cousins funeral and I am not missing that no matter what! Everything is up in the air so really really stressed out! Hope everyone’s ops go according to plan and you are all pain free I so can’t wait to not have any pain from endo xxx

    #324345

    Katie 72
    Participant

    Hi Ladies,

    Jenlea, really sorry to hear about your week & all your stresses. I’m sure your op will be fine, but if you have worries speak to your pre-operative team: my original date fell on the anniversary of my friend dying & I just couldn’t face it. They were really helpful & I got another date not long after.

    Hi Sarah, I’m due TLH tomorrow, was also confused re stay so I rang up nurses to ask. I’ve been told i should be discharged Wednesday pm (surgery due tomorrow afternoon) as long as I can go to the loo, eat, move ok & pain & wounds alright. Seems a lot to achieve in 24 hours – I’ll let you know how I go! & I was cancelled before, but they rang me they day before, think would probably refuse to get out of bed if i’d actually got there…!

    Now just trying to keep occupied @ home so I don’t worry too much about tomorrow. Thanks nervousnow for your info, good to read.

    Good luck to all xx

    #324350

    juleskirk50
    Moderator

    Good evening ladies,

    Katie good luck for tomorrow I hope you land gently onto the done couch. It’s all been cleaned and there’s lovely comfy new cushions for you 😉 try to have a relaxing night evening and we look forward to hearing from you when you can xx

    Jenlea sorry to hear you’re having a horrible time just now xx

    I’ve popped the recovery guide for you ladies who may not have seen it – it’s fairly accurate xx

    A few tips – drink loads of water and peppermint tea or capsules or peppermint oil mixed with warm water as this helps to dissipate the inevitable wind, also walking around as much as you are able, a v pillow is fab for getting comfy in bed and on the sofa when resting, take small see through bags to hospital for your charger, phone, lip salve, tissues etc as you won’t be able to lift your big main bag – and I’d also recommend a night shirt as you’ll likely have a catheter for a while and it’s easier if you’re not wearing pyjamas – good luck ladies you’ll all be fine but the waiting is definitely the worst it really is xx

    Any questions just ask or pop into the April forums to ask the ladies there – they are an incredibly friendly and supportive bunch and they’ll do their best to help you If they can xx

    http://gallery.mailchimp.com/a5692c6457e86f0e2182630fa/files/sbs_recovery.pdf?utm_source=Free+Hysterectomy+Booklet&utm_campaign=30c61c525a-Booklet-14&utm_medium=email

    #324387

    juleskirk50
    Moderator

    Jenlea good luck for tomorrow I hope all goes well and you reach the couch nice and gently – try to have a relaxing evening xx

    Katie hoping all has gone well for you and you are sitting comfortably on the done couch xx

    Katie72 – 1st May – On Done Couch
    Jenlea – 3rd May
    Sj38 – 6th May

    #324390

    Hopeful11
    Participant

    Hi there all you may 2018.
    So hope all is well .I’m day 10 and just wondering how you are all getting on .?

    #324420

    Katie 72
    Participant

    Hi all, made it back home yesterday pm. Didn’t manage to get out 24 hours post op as apparently needed to have a poop before I was ok to go! So 2 night stay instead. Has all gone fine, done as TLH with no issues @ all. I’ve had really good hospital care from everyone from nurses to anaesthetist & my lovely all female surgical team: just felt like I had someone checking on me all the time. Have some pretty amazing bruises on my tummy but not too sore if I keep up the meds. Worst bit is wind pain by far, but helped by lots of mint tea, room temp water & walking as much as I can, hoping will settle soon. The bit just before going in is definitely worse than when you get there & such a relief now to be over.

    Thanks juleskirk for the hints, small bags for all your bits a great idea! Just grabbed what I needed out of my drawer.

    Hopeful11 how are you doing? About a week ahead of me I think so hoping you’re doing well X

    #324423

    Hopeful11
    Participant

    Hi katie72, hang in there. Day 10 was a turning point for me .I’m downstairs today day 12 dressed for first time since op.im exhausted but big milestone .the house is not just untidy but dirty. I took executive descion which oh is not happy about but got a cleaner .she’s in now .I feel guilty but it’s so nesessary for my sanity and so I don’t get on everyone’s case .oh is trying his best .but is oblivious.as for teenage daughters 🙄.it will be worth every penny xx.do what it takes for you to be saine 👍💃

    #324431

    sarahmee
    Participant

    Hi- I’m new; just joined tonight. Booked in for hysterectomy Fri 11 May.
    MRI couldn’t rule out the big fibroid doesn’t contain “significant pathology” so I’m booked in quite quick. Better safe than sorry. Just booked 6 weeks off work and ordered post op tummy support and new slippers and nightie! Lovely partner is having a week working at home when I’m out to help with our two kids and dogs and cat and the house. All feels a bit rushed so great to see this site and the so kindly shared stores of other women going through similar. I’m working from home in lead up to the op so hoping I’ve not missed anything in preparing. Read 101 hints last night. I’m a medic myself but haven’t done surgery since I was a house officer 20 years ago!
    Plan to stay n touch with this group and wish everyone the very best with everything.X

    #324437

    Katie 72
    Participant

    Hopeful11, think cleaner sounds like an excellent idea. Am already noticing the difference in my house & only 4 days post op! Agree if it makes you happy money well spent.

    Hi sarahmee, welcome to our little club. I am a nurse specialist but knew zilch about all this & asked everyone to treat me the same as anyone else so I didn’t miss getting all the basics that they might assume I knew. Has worked well for me so far. Also chose to have my op where I work but restricted visitors after so I got enough rest, although it was lovely to have some friendly faces pop in. Prep wise I booked online food shops, ordered school dinners for weeks ahead & got cards/birthday gifts in for anyone due in next month or so. Also recommend mint tea in large amounts for the awful wind pain!

    Sj38 hope you’re okay in run up to surgery day, the waiting really is the worst bit xx

    #324438

    juleskirk50
    Moderator

    Evening ladies and welcome Sarah,

    Katie72 – 1st May – On Done Couch
    Jenlea – 3rd May – On Done Couch
    Sj38 – 3rd May – On Done Couch
    Sarahmee – 11th May

    #324439

    sarahmee
    Participant

    Thank you for the welcome! Katie72- you make a really good point- I recall having my first child and the midwives assuming I knew what I was doing but I had barely ever even changed a nappy so was totally overwhelmed by what I didn’t know at that time.
    I have just ordered some arnica and staphisagria and Phos 200 on the recommendation of a homeopath friend so hope that all helps post op too. Got peppermint tea and big pants, tummy support and a cushion ordered and sorted the May birthday list and food shop for next Sat to be delivered to home.
    Hope recoveries are all going well.
    Happy Sunday to everyone xx

    #324442

    Valybobs
    Participant

    Hallo May ladies 🙂
    I am on day 18 after LAVH on 18th April. I actually can’t believe how fast the time has gone. Like all others I found the waiting was the hardest part. And the couple of days in hospital were the sorest too but they have the stronger drugs too so all was OK.
    Now up to walking three quarters of a mile – slowly – and lying down afterwards. I’ve also learnt the hard way about standing too long and not resting enough. For me resting needs to be in a semi-lying position so the pressure is off the internal wound where the cervix was. Also started HRT oestrogen only so getting used to that.
    Anything I can do to help or any questions about forthcoming surgical experiences and recovery I’m happy to help where I can. We’re a right bunch of blethers over in April 18 and all in there will be happy to help also.
    Take care
    Valerie
    xxx

Viewing 20 posts - 1 through 20 (of 57 total)
  • You must be logged in to reply to this topic.

Register to Become a Member Today

Back To Top