July 3, 2015 at 8:59 pm #109814
You really are having a time of it aren’t you – I feel so sorry for you and you’re not moaning it’s what we are all here for to listen and support ! I hope that they can get you sorted – as you say they spend the time arguing about this and that but forget the patient sitting waiting to be fixed and time drags slowly when you’re waiting for something to happen and suffering while doing so – ‘huge hugs and try to have a good weekend – we are in Blackpool this weekend with my two grandsons (5 & 7) so hectic and sooo warm but they are having fun so all worth it !! XxJuly 4, 2015 at 9:48 am #109815
Julie have a lovely lovely time with your grandchildren at blackpool,you usually get a nice breeze on that coast seems ages since I felt up to doing anything with our 2 although hubby picks up every friday from school and we keep them till daughter in law finishes work its not like a day out with them,which we used to do such alot,going on the rides at gullivers kingdom seems a distant memory,bit tearful 2day will have to cheer up as my daughter the newly married one is coming to visit Mon ,Tues so need to get the cheery face out. many many grateful thanks for your support and good wishes it means such alot .
Love jill b xxxJuly 7, 2015 at 5:34 pm #109816
Well been to see Gp this morn and took hubby for a bit of support plus he tends to remember things that seem over complicated to me.Also had been reading up about a procedure to complain if you cant get a nhs referral which he was ready to bring up if Gp was saying like last time that it had to go before some board or other. Anyway Iasked for a referral and she saidas quick as a flash ‘ there could be a problem with that’ to which my hubby said we have been told that she has had referrals from all over including abroad and here in derbyshire we have no such specialist ,to which she just went back to computer screen and said she would send a letter this week ,so result we hope with that.
I then asked about the Large Hemorroid that Id developed as I explained that it hasnt gone down and is still very painful despite using the cream,but she was quite dis missive didnt look and just said to ask surgeon to take alook as it could be a rectal prolapse ,and on that cheery note it was goodbye.I dont even think its the same surgeon who deals with rectal issues but Im not sure,just hope its not months and months before I get an appointment,meanwhile have ordered a sitz bath which is supposed to help.Getting comfier again internally as antibiotics kick in so obviously something going on just want it sorted,hope everyone else ok and thanks for support once again.love jill b xxxJuly 7, 2015 at 7:14 pm #109817
Glad you took hubby for some support ( they can be quite useful sometimes lols) – glad you are feeling a bit comfier again with the antibiotics. There does seem to be different consultants for bowel and gynae issues so hope you don’t need to wait on a colorectal referral – hopefully you get your appointment soon and that it’s not a rectal prolapse you have.
I’ve not heard of these sitz baths but here’s hoping it helps a bit xx
Have a good evening and keep in touch – big hugs xxJuly 8, 2015 at 12:49 pm #109818
Thanks Julie ,no I wasnt sure what these sitz baths were but they are just a plastic fitment that sits on the toilet that you can fill with water to bathe the bottom area, a bit like transforming your toilet into a bidet I suppose,willing to try anything for a bit of comfort .Love Jill b xxxJuly 14, 2015 at 1:24 pm #109819
After chasing Gp up to get referral to John Radcliffe under nhs letter wasnt done last week but it was done yesterday also told that I could pick up a form to make my own appointment,I bet I could have done this last week,anyway first apointment is 30th sept but have asked to be contacted if any cancellations,already been reading on Sling the Mesh site were she is already booke in november for operations,just feels such a wasted year again with regards to doing much cant go far with now added bowel bladder probs as well as the walking.but glad to be able to stop on antibiotics which give some relief .
hope everyone else ok love jill b xxxxxxAugust 2, 2015 at 3:50 am #109820
Just wondering how you are doing Jill xo RuthAugust 4, 2015 at 1:44 pm #109821
Likewise Ruth how are things with you,
Im not to bad as back on the antibiotics ,just wish i would stay like this ,but of course I dont and just feels like barbed wire inside and cant put one foot in front of the other if I come off them .Its just a waiting game at the moment as gone on to nhs now.I have an appointment 30th sept in Oxford and she says shes put me on the operating list to take the mesh out but nheard anything,think It could be along wait.Got some issues with bowels and feel I want to wee as soon as I stand up sometimes too,but as we look ok on the outside everyone thinks we are.
Not seen Sissy on here lately either keep wondering how she is too cant believe Ive been in this mess one way or another for 4yrs .Hope you both have some better news love jill b xxx had to alter my name slightly as was locked out and had to start over again.August 21, 2015 at 1:18 pm #109822
Dont no how things are with you Ruth and Sissy have not heard from you .do hope that your ok and thats why you havent been on lately.
Just thought I would post to say I have telephoned the John Radcliffe in Oxford to see if they could tell me where I was on the list,Im down for late November,but they are putting my pre op down for the day before so at least everything will be done together and we can book into a travel lodge so that will be better than travelling down twice ,but still got the appointment end of September which is just a procedure to get on the N h s.Im not to bad at the moment on the antibiotics Im supposed to stay on them till i have the mesh taken out ,but my Gp doesnt like me being on them so Im dreading asking for repeat prescription especially after all the talk in the media. love to you jill b xxxAugust 25, 2015 at 10:57 am #109823
Hi Jill – I was just thinking of you! Life’s been a bit busy what with one thing and another. I was doing better prolapse-wise by being put back onto full HRT (result!) but then the patch I chose led to bloating and weight gain. The GP changed me to FemSeven which I had got on with in the past and it seemed to work as I lost almost 3kgs in the first month. However… the hot sweats then came back together with the familiar dragging feeling and the sensation like sitting on a ping-pong ball. This, of course, is an improvement of the “sitting on a tennis ball” feeling which I had pre-hyster and repair but still not exactly comfortable. I also developed more bladder infections. The upshot of this is that I am obviously not absorbing this new type of patch at all which is a shame as I quite like my slimmer shape!! I’ve got a docs appointment on Friday (she’s fab but is leaving – typical) so will discuss a different patch (estradot) to see if I absorb it better and also if it suits me ok. I feel it will be a choice between pelvic floor disintegration and feeling better in myself or stronger pelvic floor and feeling bloated and stodgy!! It’s a battle anyway to actually still be on HRT at 61!
I wanted to post this link about mesh. Not sure if you’ve seen it Jill https://slingthemesh.wordpress.com/ Hopefully less women will have to go through this. Obviously some women are fine with it but not enough has been made of the downside.
Hope that your GP gives you the antibiotics. They make such a difference when we are dealing with all of this stuff. Roll on November for you! x
I need to put up a new post about bowel problems now. Things just aren’t right somehow!! At least we all have each other.
Sissy xxAugust 25, 2015 at 2:28 pm #109824
Hi Sissy so nice that youre still looking in one way arr but not in another,can sympathize totally my bowels are really weird and been on and off laxido but going from to loose on that to being ok the next week to being constipated the following week.Trying to make things ok with just my diet ,Im now taking teaspoonful of olive oil mixed with teaspoonful of lemon juice coupled with change to coconut milk and coconut water and this seems to be producing results,although my muscles down in the abdomen still seem to ache after b m,not sure if its something to do with the mesh.Yes Ive looked on sling the mesh but its mainly tvt mesh which is just the bladder but it has been in the press so I hope they do get somewhere I did send in my probs to an email address.I also seem as if I want to wee as soon as I stand up and cannot h urry anywhere and IM worried whats going to happen when this mesh is removed ,and like you say get that tennis ball feeling again,its seems every year im having surgery with nothing really helping .It such along wait too now Im on the nhs but Ive no choice ,Think as you say maybe we would all benefit from being on h r t hope you can get something that suits you again,my tum is big ever since I had this op I look pregnant no weight anywhere else ,having to buy size 18 just to give myself room around the tum and then not fitting on the other parts.Oh how do we cope ,keep in touch its such a journey for some of us .Love and Hugs to you jill b xxxAugust 27, 2015 at 5:56 pm #109825
Well got on fine with Gp better than the one I usually see apparantly she has joined the practice as a partner, nothing was a problem ,and she had read my records and Im to continue on Antibiotics until further surgery.Makes thing so much better when they are understanding.
I seem to have got myself in a right state over this stupid appointment and just felt like running out of there but she was really nice ,so will ask for her in future.
After this stressful day ,all being my own fault ,felt I wanted to celebrate so me n hubby went to a town we hadnt been to for years .and had a good browse round ,whilst I can walk reasonable and with loos located nearby and really enjoyed our time,ooh for small achievements,Love to all jill b xxxAugust 27, 2015 at 6:52 pm #109826
Am glad you had a good response from your GP it makes things so much easier when you get someone wh is reasonably sympathetic isn’t it and you will be relieved you now can stay on the antibiotics that should make things easier for you while you wait. Good to hear you had a nice day with hubby -like you say small things but still feels like an achievement ! 😛 Take care and have a good weekend xxAugust 28, 2015 at 1:37 pm #109827
Thanks so much Julie you too jill b xxxSeptember 28, 2015 at 5:37 pm #109828
Well here we go again in one way looking forward to my appointment on the 30th but wondering what the outcome will be . It seems so strange to be feeling at least pain free on antibiotics although seemingly wanting to go to the loo as soon as Im on my feet.Not wanting to go through so much operation wise again but I expect That is whats going to happen,trying not to over think things at the mo and just see what happens at the appointment.
Love to anyone thats still looking,Jill b xxxSeptember 28, 2015 at 6:01 pm #109829
God luck at your appointment I hope you get some answers – good to hear you are reasonably comfortable while taking the antibiotics – let us know how it goes and have a safe journey. XxSeptember 29, 2015 at 9:57 am #109830
Will do thanks Julie xxx
Jill b xxxOctober 1, 2015 at 2:10 pm #109831
Hi all just an update after my long journey yest to see specialist I came away with mixed feelings.
She is keeping me permanently on antibiotics as it is controlling infection/rejection/pain issues,whilst she says yes this mesh has been put in too tight there are concerns that all the prolapse will be a far greater issue to sort out if the mesh is removed,but added that if pain returns then I will have to go back to see her.
She is also hoping that my leakage probs can be looked at ,at the Derby hosp something I migh t add that I didnt have before the mesh was inserted ,I think she said something called bladder stengthening thats if they even do it at my local hosp.Not sure Im looking forward to that inspection!!
So on the one hand yes Im relieved no surgery on the horizon at present but worried that this mesh is still inside and could cause probs anytime but hoping that it doesnt.I keep fluctuating from being high one minute to low the next.
Definitely ordering a new body from Santa this Christmas .Love to you all Jill b xxxOctober 19, 2015 at 4:36 pm #109832
Been for GP appointment this afters ,they have’nt Recieved letter from consultant in oxford but she did say that there was 64 in the system waiting to be loaded on to the system so mine could be one of them ,I hope so as I received mine at home last week ,told her more or less what it says ,she thinks that its advisable first to go to physio at incontinence clinic ,which are mainly at the small community hospitals around here.So having to ring and make an appointment tomorrow myself, and GP will keep a look out for letter meanwhile,hopefully its a step in the right direction as I wasnt really looking forward to going to hospital for yet more examinations down there just when things were calming down as any prodding and manipulation seems to set me back again.Could do with a sign down there to say “out of order” ha ha.
Hoping everyone is ok and not suffering too much ,love to all Jill b xxxNovember 3, 2015 at 6:08 pm #109833
Well been to the small local incontenence clinic,and saw a physio/nurse who I saw at the very beginning of this journey,she advised me to do pelvic floor excercises 6 times a day rather than the 3 I do,and also not to do as many each time,little stronger ones are better than weak longer ones, if that makes sense.
Also did internal to test my pelvic strength which she said wasnt bad at all so hopeful can sort out this leakage and can get the muscles stronger,I go back to see her in Jan .Best wishes to all .Jill b xxx
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