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Viewing 13 posts - 1 through 13 (of 13 total)
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  • #11885

    neata94
    Member

    hello all
    i am 16 months po after having a total hysterectomy because of ovarian cancer… im 37 so i am on hrt.. elleste solo 1mg… i am finding it difficult to find any help on hrt and surgical menopause 😥 all my friends are too young so dont understand…
    anyway i was just wondering if someone here could help.. do i need to have regular mammograms now that i am on hrt? also, although i have been extremely lucky judging by aome of the posts here i am experiencing slight menopause symptoms and wondered do i get a stronger pill (elleste solo is available in 2mg) or do i stick with it a while longer as i understand things will get better…. i am only experiencing slight flushes but have started taking sage tablets for that… the summer last year was the worst.. im hoping this yr once the sage kicks in ill be ok.. i keep getting the fuzzy head but not too often.. another thing im experiencing is the dry skin… my skin is awful and i never had any problems before… i also feel weepy sometimes.. i know i shouldn moan really as what im experiencing is very mild compared to alot of ladies….
    i have asked my gp but he is not atall sure on anything to do with menopause and just says it is up to me.. he did say that if the symptoms wasnt to bad and i was able to stick with 1mg then it will be easier for me once i stop taking them at 50 as i am on a lower dose….

    thank you x.

    #256608

    sbar175
    Member

    hi neta94

    maybe you could speak to the hospital and even someone in the dept of the surgeon who did your Op > i find it bizarre a GP cant offer a bit more advise than they have ??!!

    my mum had a hysterectomy younger than you and gave up on HRT as said it suited her better

    i too had a full hysterectomy and didnt want to take HRT – but as I am under 50 the surgeon basically insisted I needed it and I felt awful on the tablets ( livial ) so came off them ( logic being didnt agree with Mum so poss same with me…

    I would personally insist on mamogramms – without too fine a point Ovarian abd Breast Cancer are different -and there is still the supposed thing that you are more suseptible to Breast Cancer on HRT ??.

    not sure this helps you tho 😕

    #256609

    neata94
    Member

    hi stacey
    thanx again for some more advise… god this menopause is a mine field ay…. i am going to make an appointment and insist on the mammograms.. i wasnt sure if it applied to me at my age or older ladies on hrt.. i had quite a few appointments in begining with my own gp and he was useless.. i gave up asking and decided to research and then research more and try to figure this out on my own… if i dont have much luck in next few wks i will go private and see someone who specialises in hrt and menopause… thanx again for all the advise.. it really has helped xx

    #256610

    Alinig
    Member

    Hello all, I had a total hysterectomy and BSO in August 2014 due to endometrial cancer. I was very lucky in that it was found when I had a hysteroscopy to try and put a mirena coil in because I had very heavy periods (very regular) and within a month I had my op. My periods were very regular and I even went into my op with one! I was 48 and ,of course, I was put into a surgical menopause. I loved not having a period but then all of a sudden my joints ached, if anything I was freezing – not hot. I developed a frozen shoulder and NOT one person has spoken to me regarding surgical menopause or HRT. I am feeling so low at the moment – can’t sleep as I have pain radiating from my neck down to my hands. My knees are painful and my elbows. Why wasn’t I told about other menopausal symptoms that are acutely painful. I’d swap them all for a hot flush. I saw my consultant in Feb and he completely dismissed my pains and would say nothing about HRT!!?? I feel that they may have dealt with cancer but they don’t want to deal with the consequence of the surgery. Has anyone got advice?

    #256611

    Fiji62
    Participant

    Hi Alinig,

    I’m sorry to hear that you continue to have problems. Joint pain can be a symptom of the menopause.. I am not sure about the current recommendations in relation to HRT following endometrial cancer.
    There is a very good website http://www.menopausematters.co.uk where I think you may find some answers.

    I do hope that you are able to get some relief from your symptoms soon,

    Fiona x

    #256612

    Alinig
    Member

    Thank you Fiona for your compassion and care. Had another interrupted night due to pain in my shoulder and elbow. Doesn’t matter if I sleep on it or not the pain radiates over me. I am still feeling very cold – I’ve even ordered an electric blanket??!! I am seeing GP tomorrow (only waited 6 weeks for this apt!!!!?) I am putting all my faith in this Dr and hope she will do something…….

    #256613

    iona22
    Member

    Huge hugs. I had LAVH plus BSO 2 weeks ago. I started on hrt last week as the flushes and crying was hard.
    However my friend had a hysterectomy for endometrial cancer and can’t take hrt as its an oestrogen dependent cancer. I think there are non hormone treatments though.
    Hopefully you get sorted out.

    #256614

    Alinig
    Member

    Thanks Iona. I have been surfing the net and because my cancer was caught early there is HRT I can take, according to a UK site that I have seen. Hoping the Dr knows this!! Even after going through the diagnosis and surgery I have spoken to NO-ONE about the menopause and ALL IT’S GLORY! Everything is gone so what other cancer is oestrogen dependent?? There is no history of cancer in my family – just bad thyroids (on the girls side only!!! My brothers, 4 of them, have nothing. 4 boys, 4 girls in my family and I am an identical twin!). I am feeling very let down by the NHS – quick on Cancer but not much help on the consequences. 🙁

    #256615

    iona22
    Member

    I think breast cancer can be oestrogen dependent??
    Let us know how you get on at the doctor tomorrow.

    #256616

    Alinig
    Member

    Thanks Iona. Hope you are feeling ok after your op. Mine wasn’t too bad – had it done laprascopically. I really started to feel normal at 8 weeks – just in time for my daughters wedding. 🙂 (last October)

    #256617

    Alinig
    Member

    Hi all, went to Dr today and she said she could not put me on HRT without my consultants agreement but it was not all gloom. She said that although everything was removed, there could be 1 floating cancer cell that can grow with oestrogen – my answer was my histology report results said ‘no residual atypical hyperplasia or endometrioid adenocarcinoma’ was seen – in other words the cancer was not there. The biopsy had got all the cells and it was caught extremely early therefore I should be given HRT. I have to phone in a weeks time to see what my consultant had to say!!!
    On a positive note(?) – I had a steroid injection in my frozen shoulder – its still very achy but Dr said it would be and should calm down and be less painful. Oh and he said I would need a couple more injections as well!!! Hope it works…….

    #326552

    Jaks1974
    Member

    Hi,
    New user tonight! I had my op just short of 6 weeks ago, I had the lot out due to PCOS and fibroids. I’m having a small issue with night sweats but nothing else and am due to start my HRT on Monday. I’m 44 and feel I’m ok so am seriously considering not taking it but my surgeon was mad keen for me to have it. I was expecting to be really suffering straight away but haven’t, should I expect my symptoms to build or is this as bad as it gets?

    #326555

    SarahT1966
    Participant

    Hi Jaks
    I am just peri menopausal with most obvious symptoms of flushes but then again there are lots of strange things happening to my skin, body, tongue and eyes that I could quite easily attribute to the damn hormones. I am not taking anything yet but thinking about it, worried my irritable bitch syndrome will return when I go back to work in 5 weeks ish?

    If you wanted to try to cope without HRT then you should be able to, although your surgeon may have very good reasons for you to take it so you should listen to them and weigh up the pros and cons.

    I am hoping someone else can come along and give some personal reflection but from my point of view it’s a unique and personal decision. What might work for one may not be right for you.

    Really pleased you have had a good recovery and that hot flushes are your only worries going forward xx

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